Monday, March 27, 2006

Endometriosis: Its Everywhere, But in Small Amounts

No one really knows what causes endometriosis. The prevailing theory is that it is caused by menstrual blood that backs up through the tubes during one’s period. This blood also contains the shedding glands from the lining of the uterus (the endometrium). It’s these glands that start the problem. In some women, for unknown reasons, these glands stick and continue to grow in areas like the ovary (most common area), the tubes and other areas in the pelvis near the bladder and rectum. These growing glands, only in some cases, can cause scarring and inflammation that lead to tubal blockage and pain. Ten percent of women have endometriosis.
So when most people hear this for the first time they worry that they have it, and it’s their cause of infertility. Rest assured this is usually not the case. First, of the 10% of people who have it, the vast majority of them don’t have enough of it to cause any problem at all. They may have a spot the size of a dime in their ovary or in those other places, but its not enough to cause any of the problems listed above, including infertility. Second, there is a lot written about the ability of even a small amount of endometriosis to cause problems with ovulation, fertilization, embryo quality and implantation. There are not enough facts in the literature to support any of this, and most doctors today believe the only way endometriosis causes infertility is by causing scar tissue that interferes with tubal function. Some doctors like to perform a laparoscopy on every infertility patient, using the excuse that 10% of women have endometriosis, so we need find it and annihilate it. This is over operating, and fruitless. Other tests can be performed to look for endo, including an ultrasound and hysterogram. If these two tests are nomal, a laparoscopy may be indicated in only a small percentage of cases. A typical indication for laparoscopy will be discussed in the next entry.

17 Comments:

Blogger Susan McCool said...

While I did praise you on your bed side manner, I did want to point a few things regarding this post to your blog.

1. Endometriosis is RARELY seen on an ultrasound unless the endo is bad enough to make the organs appear distorted, along with the help of the adhesions, of course.

2. While I do agree that surgery is risky and a lot of doctors are surgery happy, a Lap is the only way to truly diagnose Endometriosis. Did you know it takes the average Endo Patient 9 years to get diagnosed? This is because a lot of doctors don't believe in Endo or don't want to do the surgery. What they will do is try to push hormones down their patients throats in lieu of the surgery, which is the worst thing they could do for them. GnRh Agonists and birth control pills are not diagnostic tools for Endometriosis.

3. I wanted to add some statistical information for you regarding infertility in patients with Endometriosis. Only 30% of Endometriosis Patients (and mind you, there are at least 8 million in the US alone), are infertile, leaving 70% able. Personally, I am one of the 70% (by chance miracle because my uterus was severely damaged).

The Endometriosis Research Center has a ton of useful information regarding Endometriosis, including the up-to-date research. They even have materials just for doctors :o) Check it out: www.endocenter.org. Another great source for Endometriosis information is endozone.org. You can read interviews with pioneers in Endometriosis and the skilled Excision Surgery that are quite informative.

8:07 PM  
Anonymous Anonymous said...

thank you for posting this valuable information.

7:00 PM  
Blogger Yabco said...

Well another thnx, i have question here: wt is the best hormonal drug used to supress in case of endo

1:21 AM  
Anonymous EndoChick said...

My doctor never found evidence of endo on an U/S! I was diagnosed with a lap. That's the ONLY way to get a diagnosis.

http://www.endochick.blogspot.com

11:37 AM  
Anonymous Anonymous said...

I feel sorry for your patients; you do not seem like a very knowledgeable doctor. EVERYONE knows endo cannot be diganosed via U/S.

9:16 AM  
Anonymous Breana said...

I believe that he is not saying that endometriosis can be diagnosed using ultrasound, but rather that ultrasound, hysterosalpingogram, and hysteroscopy can help to determine when the problems are NOT endometriosis.

Ironically, I am having laparoscopic surgery for endometriosis tomorrow, but I would have thought the doctor remiss at best had she not ordered an HSG and ultrasound BEFORE deciding to do surgery!

7:16 AM  
Blogger mary said...

This post has been removed by the author.

2:19 PM  
Blogger sahar said...

Dear Dr. Licciardi,

Hey, my name is Sahar, I am with www.weareendo.org. There are a prolific group of members on the website that I know would be keen to read your blogs and benefit from your knowledge. I have been reading your blogs on Endometriosis and Infertility and I think that weareendo.org will be of great interest to you and your contribution would be much appreciated. Amongst us, there are dedicated users that will avidly read your blogs and it would be great if you could come and leave your comments/thoughts. Below I have given the guest access information. Look forward to hearing from you.

website: www.weareendo.org

username: guest1

password: weare1

Best,

Sahar Hafeez

2:23 PM  
Anonymous Anonymous said...

Interesting....unless you've been diagnosed...and lived with / survived 'e' then ....sorry mate...'the diagnosis of 'e' is particular to each individual...
cheers Rose

2:00 AM  
Blogger Sophia Bloom said...

Thanks for raising awareness about endometriosis and the effect it can have on a women's fertility. I would just like to add that, while endometriosis is mainly treated as a gynecological disorder, it really efffects the whole body. A lot of women have had successful pregnancies and healthy babies by changing thier diet and lifestyle. If you are looking for more information about treating endometriosis through nutrition, without horomones please check out Life After Endometriosis!
Thanks!

10:04 AM  
Anonymous Rose said...

I've found these posts very, very interesting.

However, as the 'granny' of the 'e' community (with over 40 years experience of living with 'e' and researching this disease) it's sad, yet fascinating, to discover that the same questions are being voiced.

How wonderful that doctors, and the medical profession, FINALLY recognise those of us who have 'e'...but unless you've lived with 'e', day in and day out....well, what can I say?

Thank you for the work, and support, that is happening now.

cheers...Rose

12:49 AM  
Anonymous Anonymous said...

Melbourne, Australia has just hosted the most recent endometriosis forum...a lot of information has been gathered.

In a report from The Sunday Telegraph, Sydney (Australia) newspaper on Aug. 3rd, 08 stated that Dr. Rombauts, the clinical director of Monash (University) IVF unit...has 'developed a 'simple test' which 'may replace surgery in the diagnosing one of the most common causes of infertility'......


Oh my...how wonderful for all of you out ther....if you don't know why you're feeling so bad, you can't fix it....and I spent over ten years trying to 'find out'....

hope this helps...
cheers...Rose 'granny'

2:13 AM  
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12:55 AM  
Blogger theupsideof40 said...

I completely agree with Susan McCool and the others here that disagree with this doctor's assessment. I had a full workup of ultrasound tests (amongst others) prior to going in for "exploratory" surgery, yet the worst case scenario I was presented, was possibly a removal of my right ovary because it showed up to be 6cm in diameter. When I awoke from the surgery, I was told I had stage 5 endo and EVERYTHING had been removed. So much for your tests! Fact is, you doctors still don't know enough about this disease and it's variants (stromal being one).
For any readers who are interested in hearing about a first hand experience, feel free to visit my blog at http://theupsideof40.blogspot.com/2009/03/what-your-doctor-might-not-tell-you.html
Good luck you all! Keep speaking up and sharing your voices, so that we can increase research into the causes and prevention of Endo!

10:00 AM  
Anonymous Pei said...

Thanks for sharing this online. I just got my endometriosis removed!

9:05 AM  
Anonymous Anonymous said...

As a girl my impression of the world was one of inequality. I felt that boys got more freedom & privileges. From there started my journey of low self esteem. I hung aground with boys, intellectually challenging them, choosing electronics over home science, just to prove I was good enough. Outwardly no one could make out this fight that went on deep inside me. Marriage at 30 had given me a beautiful baby girl followed by a bad post natal. It was then, 5 years ago that I encountered Nichiren Daishonin’s Buddhism Benefits started pouring in my life. A house, stable job & financial abundance but I was still waiting for the sun of absolute happiness to arise in my heart.

3 years passed by. In a spontaneous full health check, the sonography showed cysts on my ovaries, a condition called Endometriosis, something I had never heard of before. I had been experiencing abdominal pain for close to 3 years, but no one ever diagnosed this. Research on this diagnosis shocked me. No doctors, no website could not say what caused it or what was the cure. All my life, I had begrudged being a girl and now my female system was malfunctioned. The workings of the Law of Cause and Effect. The effects for me now were infertility, constant pelvic pain, severe fatigue, low energy & mood swings. Medication also did not help & I went through a very painful removal of one cyst which came back in a few months. I felt unfortunate. My life condition became that of self pity & complaints. Life seemed a bagful of responsibilities and no energy. I got introduced to homeopathy medication and found some relief with the pain.

I came across Dr Daisaku Ikeda's guidance ” For all you know, you may have been saved from a much bigger tragedy.” Unquote. In an instant I recalled the words “NOT MALIGNANT” from the report when my endometriosis was diagnosed. Instead of begrudging I decided to do something about this! I knew that it was the manifestation of my own karma that I was in this condition. I chanted with deep gratitude and Overcoming my laziness I started doing 1 hour chanting every morning before leaving the house. I started chanting to discover my profound mission that lay behind my suffering

My mood swings were still getting the better of me. On days I was this perfect angel and then some days I turned into a devil. Saying and thinking the most despicable things imaginable. I was hurting and alienating the people who genuinely cared for me. I would immediately regret but it used to be too late. I just could not control what I said. This increased my frustration & desperation. Buddhism teaches “Thoughts, words and actions create karma”. And I was creating only negative karma. I researched a bit on what caused mood swings. Hormonal imbalance? Imbalance! But hadn’t that been my predominant life state from when I could remember. Feelings of inequality, disharmony with self and environment was what I had always experienced with all my actions revolving around it.

Isn’t equality and balance the law of nature itself? Co –existence is the dharma of the universe. My fundamental darkness’s were causing everything
Buddhism talks about “changing poison to medicine”. I now see mood swings as moments of immense passion and pledge that I will channelize this into positive for creating immense value. Irrespective of being men or women, we all have the same Buddha potential in us to tap. In the guise of my mood swings I only given hurt by saying horrible things, so loving myself now seems inconceivable. How do I undo all that I have done? Nichiren Daishonin says & I quote “It is the heart that is important” unquote. I determine to make my heart so beautiful to only feel compassion, caring and respect for others.

I determine to reach out to all women in the world who feel suppressed to discover the balance and equality that exists inside of them and also in the universe. I determine to start an Endometriosis Support Group. namratha_advani@yahoo.co.in

3:29 AM  
Blogger Natalie said...

well ladies the best way to find out if u have endo for sure is to get an ultra sound test done. thats how i found out mine. i did my surgery already and its now week 1 of week 2 recovery time for me.I'm writing from Jamaica.

9:44 PM  

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